Alternative title: Why working from home for years as a depressed person injured by a car while riding their bike is a really fucking bad idea! (also, always do your physical therapy!)
Other alternative title ideas: Please look out your windows when opening car doors, and in general as a car driver, please be kind to cyclists. I know you guys and gals currently have a war going on for the road with the bicyclists, but it’s not worth killing, paralyzing, or injuring a person permanently over.
It’s been a little over a month since I’ve updated this blog, and so many things have happened in that time – including me smoking weed with Snoop Lion (and then lighting my hair on fire and vomiting in a diner bathroom because marijuana and alcohol don’t mix duh-I-should-know-better) - that I am having a hard time keeping up. The most important bit of news though, is of course the title of this personal blog post.
I’ve actually been struggling to get any major work done since my emergency doctor’s visit last Wednesday. All I want to do is dance around my apartment, have sex or masturbate, or sleep because damn am I sore and tired now that I can walk and balance properly. The last thing I want to do is sit still and type away on a laptop. I’ve been typing my life away, glued to my Internet machine, for a few years now and it has caused me a world of physical and mental pain. I mean that in the most literal way possible – my sedentary, hermit lifestyle made my injury and depression worse.
See, the last issue left over from my biking accident – which included a concussion, cracked rib, and puncture wound in my chest above my right breast – originally manifested as a mild back pain. When I woke up on the concrete now almost four years ago due to a searing pain in my torso, I looked down at my legs and thought I was paralyzed: my legs looked odd and tangled up in my bike frame. Emergency xrays found nothing broken or wrong with my back, but something still ached as they stitched up the hole in my chest while I was on morphine.
I go back to the ER three months later complaining of what feels like a sunburn directly under my skin around my back, ass, and leg, but the nurse doesn’t think I have a slipped disk. The sunburn under my skin sensation mysteriously disappears during the visit, and feeling foolish (and broke) I sneak out of the hospital without paying.
A hike in Yosemite nine months later leaves my right knee horrible and throbbing and limiting my vacation activities on the very first day. While running for the bus drunk one warm day a few months later, my right leg gives out unexpectedly and I skid across the cement, obtaining large scabs on both elbows, forearms, knees and wrists. The next day I tell people at a bar I saved a kid from being hit by a car when people ask about the (rather gross and leaking) bandages, and the story gets me free drinks.
More than a year passes and I start complaining to a resident doctor from the original hospital about my leg feeling off, even being a different size and shape – particularly the muscle on my right thigh – but he finds nothing via x-ray of my back nor nothing wrong with my leg. He doesn’t actually touch it though, and I am unsatisfied with the entire experience.
Doctors at another hospital decide to also x-ray my back but they too find nothing, except what they call a healthy spine. They do send me to physical therapy for my back and while there, the therapist notes muscle atrophy all over my body but particularly the right leg, a really stiff right hip, and bad posture from sitting all day. Since I am there for my back though, the problem isn’t addressed except in scribbles in his notebook.
By now I have joined a startup web publication that has me working from home. My beat has me covering the Internet including the time-consuming YouTube and hackers that only come out to play late at night. I stop regularly spending time outside and hanging with friends, instead living on my couch sitting Indian style or with my foot tucked under my butt… all ways I have been sitting since I was a little girl, and ways unbeknownst to me, would make my pain worse. I stop moving almost entirely, still too afraid to ride my bike, and I start putting on weight. The electric shocks on my right side that sometimes make my muscles twitch also start interfering with what little sleep I get, too.
Two years post accident and the trip to the liquor store – the only time I am leaving my apartment daily – starts to hurt. My right leg tingles, feels weak, sometimes burns, and I have to actively pay attention to how I put my right foot down – I really just want to drag it. I also start accidentally swerving into people on the sidewalk. When this happens at a bar, I pretend to be drunk and apologize profusely.
I am now the heaviest I have ever been in my life, and I am ashamed of my body that once used to do ballet but is now inexplicably failing and off-balance. My mate of now-8 years unconsciously starts fat-shaming me.
To make matters worse, sex becomes painful to the point where I can’t come properly any more. When I do, it is a dull, almost numb ache or the exact opposite- it is so sharp I start tearing uncontrollably. It definitely feels different, but given all the problems already on my plate I ignore it. I blame it on mental illness.
Lack of human interaction and cabin fever make me even more miserable and the depression mixed with paranoia I am absorbing like a sponge from my late-night hacker sources lead to a period of intense mania that lasts for months. My mate emails an old therapist, worried I have schizophrenia or manic depression as I have started raving about my right leg being a different size (among other symptoms) and alcohol, weed, and standard over the counter painkillers are no longer keeping me comfortably numb. I have fleeting thoughts of suicide I sweat away in hour-long baths. (If I didn’t have a writing career, a supply of weed and Team Fortress 2, I think I would have offed myself for sure. )
June arrives and I finally get health insurance (for a month), and the chiropractor I go to tells me my hip is out of alignment and that my right leg is longer than the left. I feel vindicated – I may be a little crazy, but at least I am right about this! She snaps and stretches me back into place and I visit her a couple times and become good at walking for a few months. She recommends I do yoga and ballet at home, and when I do, become fully aware of how weak and unstable my right leg is.
The pain returns tenfold by August, however, given lack of funds for chiropractic visits they promptly end. The difficulty level of walking to the store to buy alcohol increases exponentially, with my right ass cheek hurting at a beyond distracting level of 8ish on the pain scale. “My ass is falling off,” I start saying with alarming frequency. No one knows what I mean.
At one point I think I have kidney stones, as it feels like tiny rocks are moving through organic tubes in my hip, crotch and back area. Giant bee stings regularly radiate down my right leg and into my toes, no longer content to live in my hip, thigh and back. I can no longer talk and walk at the same time because if I tried, I would trip. Walking requires that much of my concentration. I fantasize about getting a cane and making it fashionably cool outside the steampunk crowd.
Less than six months later, I eventually save up to go to a new doctor – a female doctor- and she feels my right thigh and notes the swelling by my crotch. She gives me vicodin for what she is determines is severe arthritis in my hip. I refuse to take the vicodin because I hate the way it makes me feel; namely, I can’t write or work while on it as a nauseous zombie.
While visiting a Jain temple in India this February, I slip on the marble and fall on my right side. Somehow the fall lessens the pain enough that by the end of the month we climb Chembra Peak to the lake.
Promptly upon returning to the States, I start fretting again because my pain has become unmanageable once I settle back into the sitting-all-day-for-work that is my lifestyle. I try stretching, sitting, standing, walking, – none of it alleviates the pain. I take a really long bike ride which seems to work, but 2 days later I am roaring with pain, ready to go to the ER (but don’t because it is expensive). The female doctor prescribes me Prednisone as now she thinks I might have nerve damage; I have begun to properly describe the pain that shifts around my right side. Prednisone is a much needed blessing and I am practically pain free for the week I am on it. She also wants to do a gynecological exam since I told her of my sexual dysfunction, but I don’t have the money so don’t schedule.
Which brings me into last week, into Dr. Heddles care, where he determined my sciatic nerve was not sliding properly along the muscle and bone in my hip. It was getting stuck and rubbing on things it shouldn’t and when it did, emitted signals that basically froze my muscles including my right ass. Instead of working, the muscle just hung there, which was why I kept thinking it would fall off if I walked more than a block. Using ART on the soft tissue, he opened up my hip and almost immediately relieved pressure on my sciatic nerve.
Less than 48 hours after Heddles unstiffened my hip by a little bit, and I find myself watching porn and having orgasm after orgasm from 1 – 4am. My pussy feels almost as it did five years ago. I can’t believe how much I missed it.
I am not out of the clear yet – the pain is still there in my hip and ass, but at a manageable 3 – 6 level. I’ll visit Dr. Heddles a few more times in the coming months sans insurance- but I am determined to do so as I like being able to walk, bike, and feel things in my crotch. I am not paying my student loans currently in order to afford it, but right now my attitude towards those loan companies (which until recently were collecting double my rent) is they can simply suck it.
Long-term goal is to pay for an EMG, but until then, I am making sure I move once every hour. To correct my sitting posture, I keep my shoes on while at home, and when sitting at my desk have a stool between my legs to keep me from crossing them.
Short-term goal? Finally learn how to moonwalk.
Looking back on the years of pain, I see staring back at me an insecure, fearful, lost and irritable woman. Look ahead to the future I can’t really tell what I will look like, but do know there will be a ton of walking, biking, maybe running, but definitely some sweet sweet dancing.
Week of the 15 – 19: where I try to function in the worst news week ever and am snubbed for some reason (probably because of my parts)Posted: April 22, 2013
The past week was an incredibly rough news week. I don’t know why I need to write that. Everyone in the US knows what I am talking about.
I knew I had become hypersensitive to the news by Thursday morning and while it’s true bad things happen all over the world every single day, the Boston Marathon bombing set the tone for the rest of the week as one of fear and sadness. I cried over many headlines and news tidbits on every day of the week until Friday, when I decided to read a tenth of the news I usually do. I was hiding under a rock, unwilling to read anything about anything, especially if it had something to do with the Boston marathon bombing.
Add to that me trying to juggle three freelance gigs for the first time. I didn’t do a particularly good job of it, but I’ve been worse during other national tragedies. Stupid super empathy, you’re good for nothing but bouts of anger and tears in times like these. Well, enough about my weird brain chemistry, here’s a recap of this week and a preview of the upcoming one:
On Monday, my Guardian piece about Anonymous and it’s mainstream shift/ now established expertise at PR was published, and it did well throughout the day (and week). I say that based off comments and retweets. I was really surprised no one in the UK or US picked out the best part of it though: that the President of United States fears Anonymous. That great factoid is courtesy of Gabriella Coleman. The Globe and Mail picked up the article though, and so did the Raw Story, which was cool.
Monday also saw me chatting with Jaime Cochran about weev and his legacy, over whiskey on the rocks. I am trying to write a good personal profile on weev for VICE, explaining the man behind the bad boy myth, perhaps even evoke some sympathy for him. I have been talking to various friends for a couple weeks now, and I have my own experiences with him over these last few years, but it wasn’t until tonight (Sunday) that I got the interview with a source I’d been looking for. I think I can finally finish that piece tomorrow, which is great, because maybe Motherboard is annoyed with me now. But they need to pay me – the student loan people have begun to hound me with phone calls again. (Because I am a simple person that loves alliteration, I made Motherboard’s primary day Monday.) Read the rest of this entry »
Because what is this personal blog for, right? I hardly use this damn thing but here goes:
I took a really long vacation - well, more like an adventure – in India. For all of February. I learned quite a few things about myself (more remembering and reflecting than anything – yeah, depression’s a bitch like that) so I know I will be processing the experience for months to come. It was a kick in the gut. No, really. One night, after 48 hours of being sick and unable to hold down water or food, I had a fever dream of such crisp details.
So I returned to the States determined to be a master of my fate, in a way that I couldn’t be if say, I was born in India.
- I started blogging for VICE’s tech blog Motherboard (a place I like much better than Slate for many reasons) after a piece I wrote about this group of online “trolls and hackers” known as the Rustle League. I think VICE is a good home for my contrarian and weird Internet stuff, and we’ll see what happens there.
- A piece I wrote about labiaplasty was published on Thought Catalog, and it made both my mate and my mother mad. They didn’t understand the value of the piece at first, objecting to its personal nature. I ended up telling my mom I don’t want to live in a world where you can’t talk freely about your body as a woman (aka, an abstinence only education nightmare where women all get plastic surgery) and that convinced her. I had originally written it for VICE which was why there is all those curse words in it. (Ha! ) I need more non-tech venues for my writing. I’ve been tech-exclusive for about 2 and a half years now (half of my writing career!), and the stay-at-home lifestyle sometimes exacerbates my mental health issues.
- My third piece for the Guardian’s op-ed section Comment Is Free should be up any time today. Yes, also very exciting. My first piece went up in January. I want to be an Evgeny Morozov/Nick Carr type (I think my blog subhead of multiple years communicates that desire, but maybe not), but we will see what happens there too.
- I am still at ReadWrite despite it being a constant sea of changes. Now an old boss was recently hired there, so, I am feeling more comfortable there now than when I first returned from my trip.
- Last week I started writing for a content start-up focused on the business aspects of web video, Video Ink. I am excited about this for a few reasons, even if it is a pretty boring job and feels like a job more than any of the other places I am writing for, because 1) it takes the digital space seriously and understands just how disruptive it is 2) out of a core team of 4 people, only one is male.
Now for some (potentially) bad news!
I am 28 now and I have yet to finish any of my books. AHHHHHHH. The one I wanted to finish first was a bit memoir-like: former Soviet Satellite refugee version of Amy Tan mixed with Obama’s Dreams of my Father done in the Collected Works of Billy the Kid style. It touches on having a single teen for a mom, among other darker themes. It’s heavy, but I know I can make it funny. My mother, however, broke down while we were preparing Easter dinner: if I publish what I want to about being a child of domestic violence, it would bring shame to her and her name. She is embarrassed. I should have known, as her and I only began having open discussions of what kind of man my birth father really was, just a few years ago. After he died, actually. But … I think that is also part of the problem – the lack of conversation. She didn’t even tell her second husband, or her last boyfriend.
I don’t know what to do here, as I feel like writing about my experiences is within my right as it was also my trauma - it is part of my coping process – and I actually think my book would make the world a better place. On the other hand, it is very much her life too. Maybe I can suck it up and finish my science fiction novel, but I am very inspired to work on this particular project. RIGHT NOW. But I can’t finish it if she won’t talk to me any more about it, can I?
The other day I had asked folks to nominate me for a Shorty Award in blogging/journalism/YouTube whatever, and instead, two males nominated me for fashion.
Okay. Nothing in any other category.
Thanks fellas, I guess??? But then I thought about it, and realized, hey I do have a sense of style! And I do write about fashion in a weird way!
So I am rolling with it, and launching a fashion Tumblr, Fuck Yeah Thrift Fashion! today. Maybe it will be an outfit of the day too, I don’t know yet.
Because being poor doesn’t mean you have to dress like it.
Sexism drove Asher_Wolf away from Cryptoparty and it looks like Twitter as well.
Last night she “ragequit” due to something related to hackers posing as “bronies” attacking her website? That is what the rumors on Twitter are saying, at least. I write “bronies” because Internet pranksters love disguising as them (or anyone they hate, really. The #cutforbieber folks, for instance, tried to blame it on 9GAG in various comment section of YouTube vlogs on the controversy).
The time stamp for the brony attack is from December, but the intention behind whatever drove the people to harass Asher_Wolf is still the same.
Her last tweet, according to Topsy, was “offline.”
While I had yet to attend a cryptoparty – it was on my agenda – I relied on her Twitter stream to keep me updated on all acts of Internet activism. She was in Australia, and her timing jived with my late night Internet wanderings when insomnia kicked in.
I get her point of not having to stick around and take abuse, but why quit Twitter when it was her site that was disturbed, not her news distribution service?
I feel like I am being punished.
1:30 pm Update:
On secondary inspection, it was probably the trolls that came out following her Aaron Swartz post.
Asher_wolf is back on Twitter, no explanation for the hiatus.
…on ModCloth, the online retailer and my guilty pleasure. On the Tracy Reese website all sizes but 4, 6 and 12 had sold out by 3:30 am the early morning after they went on sale. By 10:45 pm however, it looks like Reese ordered a new batch of dresses for production as now the dress is available in all sizes from 0 -14.
ModCloth, however, is still out of stock.
The official name of the dress, according to the Tracy Reese website is “Pink Wallpaper Combo Frock.” Really boring, and borderline horrible of a name, if I must say.
ModCloth went with “Best of Luxe” which is infinitely better. Pink Wallpaper Combo Frock may be more practical of a name but it lacks imagination and means nothing to me, a woman who would want to buy this dress. Well, actually, it does say something: it says you are wearing a combination of wallpaper as a frock. “Best of Luxe” does not evoke “you are wearing wallpaper.”
Luxe, a word I had not seen before, means “the condition of being elegantly sumptuous.”
Best of Luxe is a rayon/silk mixture though, so not really the best of “being elegantly sumptuous.” Despite the exaggeration of luxury, the ModCloth name implies that while wearing the dress, you then become the best at being elegantly sumptuous. Which again, is better than wearing wallpaper.
The addition of rayon into the fabric, which diminishes the luxury, is clearly an economic choice. Read the rest of this entry »